BOSTON (CBS) – The young Framingham boy who inspired the #WhyNotDevin campaign has died at six years old.
Devin Suau had a rare form of pediatric cancer called Diffuse Intrinsic Pontine Glioma (DIPG). Suau had an inoperable, incurable tumor on his brain stem.
On Friday, Suau’s mother announced on Facebook that her son died.
“With a beyond shattered heart and soul, I write this post to tell you that our little super hero lost his very courageous battle early this morning surrounded by Jay and I and the boys,” Christine Suau wrote.
Suau’s family developed the campaign #WhyNotDevin, seeking to find a cure for the aggressive disease.
“Devin loved to laugh and tell jokes,” Christine said. “He was just the kindest human being.”
The campaign reached around the country, with celebrities tweeting about #WhyNotDevin.
“I want Devin to be remembered for being a fighter, being a kid who never gave up,” his father James Suau said. “He was faced with a really, really bad hand and he did it with strength and grace and courage.”
More than 100 people gathered to remember and celebrate Devin at Framingam Centre Common Friday night. There were lots of hugs and some tears for a community that came together to console each other over the loss.
“He’s given all of us life to live our life to the fullest,” said Kallie Jones. “He’s just magnificent.”
The Common lit up green for Devin’s favorite superhero, Green Lantern.
“It makes me feel sad at the moment but also our community has come together for him and I’m so proud to be part of Framingham,” said Heather Claflin.
Following Devin’s death, several prominent figures tweeted condolences, including Boston Mayor Marty Walsh and several professional sports teams.
Patriots quarterback Tom Brady was devastated when he heard of Devin’s passing. “I’ve been fortunate to meet a lot of really brave, courageous people over the years and it’s a really tough situation, I hope the family is doing OK,” Brady said.
Devin’s family says the fight to find a cure for DIPG lives on. “We donated Devin’s tumor so that maybe Devin didn’t have the cure but maybe they’ll find the cure through Devin’s tumor so that other families will not have to go through this,” Christine said.