NH Family Starts Petition To Allow Controversial Brain Tumor Drug

By Michael Rosenfield, WBZ-TV

HUDSON, N.H. (CBS) — McKenzie Lowe wants to be a veterinarian someday, and she plans to accomplish that goal.

“I’m feeling pretty good,” said Lowe. “Nothing’s been really bothering me about any of this.”

At just 12 years old, she already faces big challenges. You wouldn’t know it by looking at her, but she’s been diagnosed with DIPG, an inoperable brain tumor.

“It’s the only word I didn’t want to hear is ‘inoperable’,” said her grandfather Frank LaFountain. “But she’s doing good, she’s handling it, so are we, for the most part.”

LaFountain has started a petition to sway the federal government to allow McKenzie to take a controversial drug that has not been approved by the U.S. Food and Drug Administration.

“She has gone through radiation and chemo,” said LaFountain. “But the tumor has grown back.”

Family and friends hope to collect 100,000 signatures. So far they have just under 4000.

Related: Petition To FDA

They believe the drug therapy, spearheaded by a doctor in Texas, could be her best chance at survival.

“If this were your child, and this was a chance that she could have compared to no chance, how could you not do it,” said family friend Kim Frenette.

  • http://www.grumblesandrumbles.com/2013/11/25/false-hope/ False Hope. – Grumbles & Rumbles

    […] their “compassionate use” exemption. The petition has received local media coverage in Boston and New Hampshire and the Boston Bruins Facebook account even decided to share it on their front […]

  • http://boston.cbslocal.com/2013/11/27/nh-sen-ayotte-urges-fda-to-allow-experimental-drug-to-help-local-girl/ NH Sen. Ayotte Urges FDA To Allow Experimental Drug To Help Local Girl « CBS Boston

    […] Senator Kelly Ayotte is urging the Food and Drug Administration to allow a 12-year-old McKenzie Lowe to continue an experimental treatment through the FDA’s compassionate use […]

  • http://boston.cbslocal.com/2014/03/26/fda-allows-nh-girl-to-try-controversial-brain-tumor-drug/ FDA Allows NH Girl To Try Controversial Brain Tumor Drug « CBS Boston

    […] And now comes news that the U.S. Food and Drug Administration has granted her wish to allow her to try a controversial drug her family believes could help cure her inoperable brain tumor. […]

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