Soccer Teams Raise Money For Girl With Rare Genetic Disease

IPSWICH (CBS) – Ipswich took on Georgetown varsity soccer on Thursday night, but the star was an eleven-year old girl.

Talia Duff’s friends surrounded her at a game played in her name. When asked what it was like having a soccer game played for her, Talia said, “It’s been great, and I love it.”

Talia has Down syndrome. Separate from that, a couple years ago she was diagnosed with an incredibly rare genetic disease.

“CMT4J it’s a lot like ALS. People with CMT4J get very weak they lose use of their legs and arms,” her mother Jocelyn Duff said. “We are approaching a cure with CMT4J for Talia and others with gene therapy.”

soccer1 Soccer Teams Raise Money For Girl With Rare Genetic Disease

Talia Duff (WBZ-TV)

The teams face each other twice a season. Starting this year – the second game raises money for a non-profit. Ipswich immediately knew helping Talia was their goal.

“They are just a great family. She’s such a great girl. She lights up a room,” said Cowan McCormick, Ipswich co-captain.

Money raised through donations and raffles at the game go toward the Duff’s Cure CMT4J Foundation to help researchers develop a cure for Talia and others.

soccer2 Soccer Teams Raise Money For Girl With Rare Genetic Disease

Talia Duff honored at Ipswich soccer game (WBZ-TV)

“I want to thank you all so much,” said Jocelyn Duff to the teams and crowd.

The Ipswich players gave Talia a team jersey and a soccer ball autographed by all the players. Both teams donned special laces for the cause.

Their efforts provided the Duffs with much more. “Dealing with a disease is always stressful, straining and then you come to an event like this,” said Talia’s father John Duff.

Ipswich and the neighboring communities have raised $300,000. The foundation’s goal is one-million dollars. The website is curecmt4j.org

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