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Event In Mass. Brings Attention To Rare Diseases

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Massachusetts State House in Boston (credit: AP)

Massachusetts State House in Boston (credit: AP)

CBS Boston (con't)

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BOSTON (AP) – An event planned for the Statehouse is intended to bring attention to people suffering from lesser-known diseases and the researchers who are trying to find cures.

Gov. Deval Patrick signed a proclamation designating Monday as Rare Disease Day in Massachusetts.

MassBio, a group that represents the biotech industry, says nearly 30 million Americans suffer from little-known but serious diseases, making it a major public health issue in the U.S.

Patient advocacy groups and biopharmaceutical companies will be among those attending Monday’s event. The speakers will include a representative of a foundation that helps victims of Schwachman Diamond Syndrome, a rare pancreatic disorder in children that makes it difficult for victims to digest food.

(Copyright 2011 by The Associated Press. All Rights Reserved.)

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